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All statements about Charlie Gard case

46 statements about Charlie Gard case in 4 sources, by upload date.

Back to Charlie Gard case.

2018

  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — announcement: Ali and Abi, sixth-year medical students at Cambridge University, present a video introducing the ethical and legal issues raised by the Charlie Gard case. — video description
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says Charlie Gard was born in August 2016 with MDDS, one of a group of neurodegenerative conditions that cause brain and muscle damage and get worse over time. — 00:00:29
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says an American doctor offered Charlie Gard an experimental treatment; his parents wanted to fly him to the US, Great Ormond Street Hospital said this was not in his best interests, and a court battle followed. — 00:00:58
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says the Charlie Gard case caused a huge media storm and was very highly covered both in the UK and, interestingly, in the US. — 00:01:27
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the Charlie Gard case was very controversial and captured the attention of everyone from Donald Trump to the Pope. — 00:01:27
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the Charlie Gard case hinged on his best interests: Great Ormond Street Hospital, backed by many experts, held that continued or experimental treatment was not in them, while his parents wanted to give him a chance. — 00:01:58
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — recommendation: Ali recommends a BBC News article as a very readable account of what happened in the Charlie Gard case for anyone unfamiliar with the details. — 00:02:28
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says Mr Justice Francis presided over the Charlie Gard case, saw the evidence from both parties and on 24 July 2017 wrote a statement of about 20 parts. — 00:02:57
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Mr Justice Francis (quoted): Mr Justice Francis wrote that a lot had been said about the Charlie Gard case by people who knew almost nothing about it but felt entitled to express opinions. — 00:03:34
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Mr Justice Francis (quoted): Mr Justice Francis wrote that Charlie Gard's parents had accepted his life could not be improved and that the only remaining course was palliative care, letting him die with dignity. — 00:04:05
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says Charlie Gard died on 28 July 2017, after the judge's statement of 24 July. — 00:04:05
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says any discussion of the Charlie Gard case must remember the parents' incomprehensible loss, but media amplification made it an issue worth discussing more widely. — 00:04:33
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — recommendation: Ali recommends Iain Brassington's article on the Charlie Gard case in the blog of the Journal of Medical Ethics as a readable, more opinionated account. — 00:05:11
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali agrees with Iain Brassington that legally the Charlie Gard case was very straightforward. — 00:05:11
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says Charlie Gard's parents wanted continued and experimental treatment while the hospital thought it futile, so the courts were brought in as an independent body to hear both sides and decide his best interests. — 00:05:41
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says Dr Hirano, a US doctor, said he could help Charlie Gard and offered nucleoside bypass therapy. — 00:05:41
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi thinks Dr Hirano had not necessarily seen up-to-date scans of Charlie Gard when he gave his initial assessment. (hedged) — 00:06:10
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says commentators have often criticised Dr Hirano as the main person who gave Charlie Gard's parents undue hope by offering the experimental therapy. — 00:06:39
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says nucleoside bypass therapy had never been tested on Charlie Gard's strain of mitochondrial disease, only on mice with a variant, and his condition was worse, affecting brain and muscles. — 00:06:39
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the judge agreed with Great Ormond Street's experts that the evidence was not there, so the best-interests decision was against the experimental treatment and for withdrawing Charlie Gard's life support, as each day meant suffering. — 00:07:29
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — recommendation: Ali says medicine interview applicants should be aware of the ethical points raised by the Charlie Gard case. — 00:08:27
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the Charlie Gard case raised five main ethical issues, beginning with autonomy, the balance of beneficence and non-maleficence, and justice or allocation of resources. — 00:08:56
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says that in the Charlie Gard case autonomy means mostly the parents' right to decide, since a young, disabled baby is given little personal autonomy. — 00:09:26
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the Charlie Gard case got much US media attention partly because American courts are very politicised, with political parties appointing judges. — 00:11:52
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says many American commentators claimed a US system would have cared about Charlie Gard's parents' wishes, and portrayed the NHS as holding him captive. — 00:12:21
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the NHS did not hold Charlie Gard captive: when parents and doctors disagree, an independent court arbitrates, which is what happened and which he thinks is a pretty good way of doing things. — 00:12:50
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says proponents of the experimental therapy argued that the alternative was to let Charlie Gard die, so even a tiny chance of improvement should be taken. — 00:13:49
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says almost any treatment carries harm, and flying a very sick baby to the US for experimental treatment carried real risk, so it was not simply Charlie Gard's one shot. — 00:14:59
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says those in favour of withdrawing Charlie Gard's life support argued that every day it dragged on was another day of suffering he could not express. — 00:15:21
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali reads Great Ormond Street Hospital's statement saying that since the first hearing in March 2017 it held every day was not in Charlie Gard's best interests, that two international experts believed they elicited a pain response, and that his relationship with the world had been one of suffering. — 00:15:43
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says Dr Hirano's new evidence led Charlie Gard's parents to seek a retrial, which dragged the case on and potentially prolonged his suffering. — 00:16:12
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says it later emerged that Dr Hirano had not examined Charlie Gard or read the judge's statements about him. — 00:16:12
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says the staff caring for Charlie Gard faced an unprecedented amount of media attention and real abuse. — 00:16:42
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says Charlie Gard's parents raised £1.3 million through a fundraising campaign to fly him to America for the experimental treatment. — 00:18:02
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the debate in the Charlie Gard case was never really about allocation of resources. — 00:18:02
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says Great Ormond Street Hospital agreed it would have provided the treatment regardless of cost had it thought it in Charlie Gard's best interests. — 00:18:32
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says the Charlie Gard case was not euthanasia, despite many outlets saying so: euthanasia is acting with the intent to kill, and in Charlie's case the intent was never to kill. — 00:21:38
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says it was not that continuing to live was against Charlie Gard's best interests, but that the specific treatments, the experimental therapy and mechanical ventilation, were. — 00:22:14
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali personally believes it was right to withdraw Charlie Gard's medical treatment. — 00:22:49
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Ali says that in calling the Charlie Gard case not euthanasia he uses the strict definition, which requires intending death as the main effect of withdrawing treatment. — 00:23:53
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says the Charlie Gard case is not isolated but part of bigger issues, one being individualism: everyone is "Dr Google" now. — 00:24:18
  • 2018-01-27 · Charlie Gard - Medical Ethics and Law — Abi 5A9Ae87434: Abi says mistrust of the mainstream was a huge issue while Charlie Gard was alive, with Donald Trump coming to power and Brexit campaigners saying experts and statistics did not matter. — 00:25:13
  • 2018-02-14 · Monthly Favourites #1 - Ali Abdaal — Ali found the Journal of Medical Ethics blog while preparing his video on the Charlie Gard case, and has spent the last few weeks reading through its backlog. — 00:01:08

2017